Below are a list of educational resources, videos, and support organizations.
Online Resources
Hereditary Syndromes, Genetics, and Cancer:
- UCSF Center for BRCA Workshops - The UCSF Center for BRCA Research and UCSF Hereditary Cancer Clinic are offering a series of educational workshops to provide more information for mutation carriers and family members.
- FORCE: Facing Our Risk of Cancer Empowered - FORCE community includes people with a BRCA, ATM, PALB2, CHEK2, PTEN or other inherited gene mutation and those diagnosed with Lynch syndrome. We accomplish this through our education, support, advocacy and research efforts.
- American Cancer Society
- National Cancer Institute/Cancer Information Service
- UCSF Psycho-Oncology - Connect with psychologists and psychiatrists who care deeply about the emotional needs of patients and their families as they cope with cancer and treatment.
- UCSF Art for Recovery - Individuals coping with life-threatening illness are given an opportunity to express their feelings and experiences through art and writing workshops, visits at the bedside, and individual attention. Artistic ability is not necessary to participate.
BRCA1 and BRCA2, Breast Cancer, Ovarian Cancer:
- Bright Pink
- Basser - Penn Medicine’s Basser Center for BRCA
- American Cancer Society: Breast Reconstruction Surgery
- Pink Ribbon Program at the Peninsula JCC - The Peninsula JCC offers the Pink Ribbon Program, a postoperative workout designed to enhance recovery for breast cancer patients. It’s the only program of its kind on the Peninsula!
- In the Family (2008) - The first-person story of director Joanna Rudnick as she tries to decide on a course of action after testing positive for the BRCA1 pathogenic variant
- PINK AND BLUE: Colors of Hereditary Cancer (2015) - PINK AND BLUE takes a profound look into the BRCA world examining what it is and how this pathogenic variant puts both women and men at a higher risk of developing numerous cancers.
- Considering BRCA Genes: Knowledge Improves Outcomes: Watch this video to hear from UCSF BRCA experts Alan Ashworth, PhD, FRS, Pamela Munster, MD and Mindy Goldman, MD.
- Why genetic testing is important for ovarian cancer: "We know that about 20%, and the numbers may be even higher, that our patients with ovarian cancer have a hereditary predisposition,” says Dr. Jocelyn Chapman, a gynecologic oncologist at UCSF Medical Center. Watch this video to learn more.
Li Fraumeni Syndrome:
Lynch Syndrome:
Pancreatic Cancer:
- National Pancreas Foundation
- Pancreatica: Confronting Pancreatic Cancer
- European Registry of Hereditary Pancreatitis and Familial Pancreatic Cancer
Prostate Cancer:
- Family communication around prostate cancer: Watch this recording of a panel discussion hosted by AnCan.org and UsTOO to hear from parents and their children about how they communicated around prostate cancer in the family, facilitated by Dr. Alicia Morgans of Northwestern.
Stomach Cancer:
Clinical Trials:
- FORCE - Research Clinical Trials
- Population Health and Cancer Testing (PHACT) Study Cohort 1: Mallika Dhawan, MD discusses the feasibility of cancer risk screening in large multiethnic populations. With costs coming down, it’s becoming more feasible.
- Understanding Clinical Trials: Hear from Mallika Dhawan, MD, UCSF Medical Director for Cancer Risk and Hereditary Cancers.
- Understanding Translational Genetics: Hear from David Quigley, PhD about how scientific discoveries in the lab are advancing precision care for our patients.
Books